Dear S'cubies:
In the past you've been kind enough to ask after the health of my grandson, Charlie, so I thought you'd like to know that his mother, my daughter Beth, and the charity she founded, APFED, have brought the following bill before Congress to establish a National Eosinophil Awareness Week.
She needs your help to get the bill passed. Please read her message below which will tell you what to do to help. It costs nothing but a phone call, email or letter.
Thanks so much for the support you've offered since Charlie was diagnosed with this awful disease.
Diane
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Subject: Fwd: Action Alert! National Eos Awareness Week HRes 296
WE HAVE A BILL FOR NATIONAL EOSINOPHIL AWARENESS WEEK!
H RES 296 (can be seen below) We need your support!
WHAT TO DO/ WHAT TO KNOW!
1. Call your Congressperson's office
2. Urge them to become a cosponsor and why it is so important
3. Email me at
beth@apfed.org and let me know you did so and who your Congressperson is
4. We follow up with the Congressperson and ensure they sign on
5. If we all work together this will pass in a week or thereabouts
6. H RES 296 becomes a law and National Eosinophil Awareness Week goes on forever!
We will publish the entire list of Co Sponsors- hopefully YOURS will be on the list. Mine already is, so my job is to rally all of you into this- Let's show them we are HERE!
Beth Mays
www.APFED.orgPS. If you want to see it yourself, go to
www.house.gov and do a bill search (middle of the home page) Enter eosinophil and it will show up.
1st Session
H. RES. 296
Supporting the goals and ideals of National Eosinophil Awareness Week, and for other purposes.
IN THE HOUSE OF REPRESENTATIVES
April 16, 2007
Mr. LARSON of Connecticut submitted the following resolution; which was referred to the Committee on Education and Labor
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RESOLUTION
Supporting the goals and ideals of National Eosinophil Awareness Week, and for other purposes.
Whereas the term `eosinophilic disorders' is a general term used to describe a group of diseases and disorders caused by the production of too many white blood cells called eosinophils;
Whereas eosinophilic disorders patients suffer from their immune system attacking their body's own normal, healthy tissue, resulting in inflammation or swelling;
Whereas an estimated 50,000 people are affected by eosinophilic disorders in the United States, many of whom remain undiagnosed or misdiagnosed;
Whereas inflammatory eosinophilic disorders are thought to be both allergic and autoimmune diseases, such that the body's immune system, which normally fights infections and viruses, mistakes common food proteins and environmental allergens as foreign;
Whereas eosinophilic disorders cause chronic illness that significantly impacts a person's quality of life and ability to attend school and work, and dramatically alters dietary lifestyles;
Whereas some eosinophilic disorders cause life-threatening and sometimes fatal illnesses by causing inflammation of the vital organs, such as the heart, lungs, kidney, and gastrointestinal tract;
Whereas eosinophilic disorders are difficult to diagnose and treatment is often delayed, resulting in unnecessary suffering;
Whereas many patients with eosinophilic disorders often have severe long-term disabilities as well as the severe limitations imposed by the disease itself;
Whereas some eosinophilic disorder patients will suffer permanent irreversible organ damage as a result of delays in diagnosis and proper treatment; and
Whereas the American Partnership For Eosinophilic Disorders has identified the third week of May as an appropriate time to recognize National Eosinophil Awareness Week in order to educate communities across the Nation about eosinophilic disorders and the need for research funding, accurate diagnosis, and effective treatments: Now, therefore, be it
Resolved, That the House of Representatives--
(1) supports the goals and ideals of National Eosinophil Awareness Week; and
(2) encourages health care providers and the American Partnership for Eosinophilic Disorders to increase education and awareness regarding eosinophilic disorders.
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